Medical update

So the latest on the medicalness of Melissa...

Saw the rheumatologist a week ago. We upped the dosage on the organ rejection medication (used for immune suppression). Turns out I've been running fevers of about 100 degrees every day starting around 4pm- this is due to my disease and just illustrates that my disease is VERY active right now (my doctor admired my gruesomely purple fingers and toes, with lovely angry red blister/ulcers on them...seriously, who needs a Halloween costume when you've got my hands? :) ).

He then asked how my back was doing and if I had decided go with the spinal injections. I told him that I wasn't convinced that the ortho doc thought it was biomechanical and given that I have made some awesome progress in general and especially since going on the new medicine, I am thinking it's all disease related, and given that the spinal taps I had in high school botched some nerves up for a good few years (my left leg would go numb if I sat in a certain position), I didn't feel that poking around in my spine right now was the right thing to do. And he agreed with me 100%. That made me feel good.

My disease flared a little stronger this week (stress) and my SI joints became inflamed again. But I was actually pretty happy about it because it shows that it is my disease and not some weird other back thing going on. They (SI joints) are already feeling better so I figure I will be back where I was activity-wise last week as soon as things calm down again.

But in general (pretending this week didn't happen)...things are definitely improving!